Links to websites with family and staff friendly information
*This list is for your general information, we do not endorse the content you will find, we do not take credit for or gain in any way from linking you to the content. Please consult a professional if guidance is needed.
Challenging behaviour resources
Making health interventions easier
Puberty and sexuality
Organisations for families
What do I do now? A book to assist parents upon hearing that their child has special needs.
A Parent’s Guide: Improving the well-being of young children with learning disabilities
Supporting people with profound and multiple learning disabilities. Core and Essential Service Standards.
Raising Our Sights: how-to guides and films to improve services for adults with profound intellectual and multiple disabilities: advocacy, clinical procedures, communication, health, housing, personalisation, support for families, training the workforce, what people do in the day, wheelchairs and commissioning
Paving the Way Early intervention for children with learning disabilities whose behaviours challenge
The Challenging Behaviour Foundation is a UK based charity for people with severe learning disabilities whose behaviour challenges. Their vision is for anyone with severe learning disabilities who displays challenging behaviour to have the same life opportunities as everyone else. Click here for information on self-injurious behaviour specifically.
Information about Behaviour This information resource is for parent carers who are concerned about their child’s behaviour. In this resource UK National Children's Bureau you will find information to help you: • understand why children might exhibit behaviour that is challenging • provide strategies to prevent or minimise behaviour that is challenging.
Institute for Behavioural Training Elearning.
These trainings are designed for parents, siblings, grandparents, and/or respite workers. Lessons focus on working in the home or community and on the day-to-day relationship with the child. Topics include home skills, parent support, introduction to ABA, and behavior management.
What to do when your person needs more time to process information
The Centre for Social and Emotional Foundations in Early Learning The Center holds training and technical assistance materials that reflect evidence-based practices for promoting children's social and emotional development and preventing challenging behaviors.
Teaching daily living skill How to break a skill down into steps and teach it in an organised way. The Life Skills Guide and Planner gives samples of how this can be done, you will need to adjust for your learner.
Using ABC charts to determine the meaning of behaviour
Self-injurious behaviour in children with an intellectual disability
Top 10 Discipline Tips for Children with Oppositional Defiant Disorder Raising a child with oppositional defiant disorder can be frustrating because you feel like everything is a constant battle. Positive behaviour support strategies are effective.
Functional Assessment Interview Form for A Young Child
Visual Aids for Learning and Communication. Images to support learning; empowering participation, success and independence. There are high quality free resources for download from the site. Pictures are an essential resource to support many children's learning and this website is a good source. You can also use "Google images" to find the pictures you need to explain an upcoming change or new routine to your child. Here is a great booklet providing guidance on making visual supports. Visual Aids Gallery Short videos on how to use choice boards, checklists, token boards etc. as well as pictures that can be downloaded. Education Autism.com has a great guide on how to make a PECS book - try buying doublesided Velcro from a haberdashery by the yard, it is less expensive that from a stationary shop: http://www.educateautism.com/make-your-own-teaching-aids/make-a-pecs-booklet.html
https://ourboards.co.uk/ is a company set up by a Dad to an adult daughter who has learning disabilities, there are wide range of very practical, user friendly boards for purchase to support people of all ages with a variety of concepts.
Token boards Token boards are a great way to motivate children and adults alike. Before you use one however, you must learn how to use one properly. Please read this: http://www.educateautism.com/token-economy.html and this https://www.verywell.com/problems-with-token-economy-reward-systems-1094773 before going any further. Otherwise frustration and confusion can arise which would be counterproductive: http://www.educateautism.com/free-materials-and-downloads.html/category/token-economy-charts.html. Consult a Board Certified Behaviour Analyst if you need help in this area.
Information sheet on specialist equipment and safety adaptations from the Challenging Behaviour Foundation.
Autism Spectrum Disorder Document listing links to related websites
Learning how to swallow pills
A Parents Guide to Blood Draws for Children with Autism
(Short printable brochure A Parents Guide to Blood Draws for Children with Autism)
Easy read psychotropic medicine information
Making reasonable adjustments in medical tests: bloodtests. Bloodtests example and links to other types of examination and screening at the end of this 28 page document from Public Health England
Puberty Talking to your child about his or her sexuality.
Sexuality and Relationship Education for Children with Autism Spectrum Disorders A Professional's Guide to Understanding, Preventing Issues, Supporting Sexuality and Responding to Inappropriate Behaviours. Jessica Kingsley Publishers: London by Davida Hartman (2014) (only €26)
The Healthy Bodies Toolkit Files for the Health Bodies Toolkit in PDF format for your use.
Teenagers Information relevant to the teenage years
Inclusion Ireland Inclusion Ireland campaigns for changes in services and legislation that will improve the quality of life and participation of people with an intellectual disability in Irish Society. In addition to this central role, Inclusion Ireland promotes advocacy; provides an information and advice service and; organises seminars and conferences on intellectual disability.
Special Needs Parents Association The Special Needs Parents Association is a national parent-run organisation which provides support and information for families who have children with disabilities and special needs in Ireland regardless of age or diagnosis.
LEAP Empowering families experiencing disabilities to create self-directed lives.
Foundation for People with Learning Disabilities Raises awareness of learning disability issues amongst the wider public, with the goal of breaking down stigma and discrimination
Young Sibs A website that provides information, advice and support to younger siblings of disabled children has been launched by Sibs, a charity for siblings of disabled people.
Sibs Free webiste for brothers and sisters of children and adults with disabilities. "Siblings - the Autism spectrum through our eyes" Book available for purchase online
HADD Family Support Group Supporting families around hyperactivity and attention deficit disorder.
Down Syndrome Ireland Down Syndrome Ireland is a national voluntary organisation supporting people with Down syndrome and their families in twenty-five branches nationwide.
Circles Network. Circles Network is a UK based organisation developing its work throughout the United Kingdom and Ireland. The focus is to build inclusive communities on the foundations of justice, advocacy, empowerment
Oneplaceforspecialneeds.com An American website, some information specific to America but lots of generally good information, especially on social stories.
Preventing Parent Burn Out: Model for Teaching Effective Coping Strategies to parents of children with learning disabilities.
Careforthefamiliy.org.uk Articles to encourage and support and a telephone call and email befriending support service for those caring for a child with additional needs. The aim is to link parents who have a child with a similar need, but are little further along the journey of caring for a child with that need.
Travel companies which provide dedicated supports Center Parcs (opening in Ireland 2019); Tui Holidays www.tuiholidays.ie; Happy Kids Holidays (ASD friendly villas in France) www.happykidsholidays.com; Dublin Airport have "important flyer" lanyards; most airports offer fast-tracking through check-in and security, if given advance notice.
Toilet Training for Children with a Disability An 8 minute YouTube video with very good Toilet Training Tips from the Continence Foundation of Australia.
Poo & You - Dimensions brief guide to constipation A simple 4 minute video explaining constipation and its management.
Additional Information is available on the Toileting Training Pack and Powerpoint on the Cork/Kerry tab above.
Sports Partnerships The Irish Sports Council promotes increased participation for all through a variety of resources and means, including the development of a network of 30 Local Sports Partnerships throughout the country.
Rare Diseases Search for the rare disease organisation that can help you.
Unique - Support and Information A rare chromosome disorder support group.
Help my Kid Learn Provides fun activities that parents can do with their children to improve their reading, writing and maths skills. It highlights the way children learn as part of their everyday lives.
Do2learn provides thousands of pages of social skills and behavioral regulation activities and guidance, learning songs and games, communication cards, academic material, and transition guides for employment and life skills. Pictures cards.
Tips and Resources Factsheets Tips and resources fact sheets from Vanderbilt University are tools for individuals and families with and without disabilities, service providers, students and trainees, and anyone interested in learning more about disabilities and disability-related topics.
The Lifespan Transitions Centre offers resources, training, technical assistance, and consultation to support the successful transition of individuals with autism and multiple disabilities throughout their school careers and into their adult lives. Resources address community living and employment.
Special Needs Products Fledglings is a charity that finds and sells products that improve the lives of disabled children and their families.
Childrenwithspecialneeds A site run by parents for parents
Royal College of Psychiatrists Easy read format of well-researched information related a variety of topics within intellectual disability
Supernanny meets Applied Behaviour Analysis YouTube video of a family with 3 year old boy implementing ABA to help their family. Link to related information.
One-page profiles Follow the individual journeys of people who use services, families, and staff, across education, health and social care. Find out how one-page profiles can help change relationships, as people learn what is important to each other, and increase choice and control, by helping to deliver personalised support.
Moneycounts.ie A collaboration between Saint John of God Carmona Services and MABS to teach people we support about money.
www.justlookandcook.ie Cookbook useful to those who have literacy problems. Text-free, using photographs with popular recipes.
Training materials for teachers of learners with severe, profound and complex learning difficulties. teachinglearnerswithmultipleneeds.blogspot.com
Living in the Community - Housing Design for Adults with Autism A guide on how design can improve living environments for adults with autism, supporting their specific needs and resulting in a better quality of life.
Access to Justice for Children with Mental Disabilities A set of on-line training materials. Access to justice is a human right which entails effective access to the justice system including by non-discriminatory participation in fair proceedings and entitlement to appropriate remedies. The term ‘mental disabilities’ has been used in this project to refer to people with psycho-social disabilities, intellectual disabilities and people with autism.